To his friends, Sam Killian is a fun-loving and outgoing little guy. He never met a stranger and will talk to you until your head spins. He loves to run and play – trying to keep up with his older brothers and sister, just like any nine year old. Most people would never be able to tell that Sam has Duchenne Muscular Dystrophy, a degenerative disease that will cause the muscles throughout his body to break down over time. He is literally in a race against time, trying to keep his muscles from wasting away.
When Sam was diagnosed with Duchenne Muscular Dystrophy (DMD), in 2005, his family looked everywhere for an organization that could help them make sense of this disease and hopefully help find better treatments and eventually a cure – they found Parent Project Muscular Dystrophy (PPMD). PPMD was organized in 1994 by a group of parents with children with muscular dystrophy and is led by Pat Furlong. Pat’s fight against DMD is motivated by her two boys, Christopher and Patrick, who died form DMD in 1995. The organization is totally dedicated to Duchenne and has been a leader in funding research and lobbying lawmakers to dedicate resources to the fight against DMD.
Sam’s Day 2011 at NorthPark
Sam’s Day 2011 at NorthPark is an opportunity to help raise funds to benefit the research programs of Parent Project Muscular Dystrophy and to help people of all ages learn about Duchenne muscular dystrophy and living with disabilities. Our goal is to help give kids with Duchenne Muscular Dystrophy a chance to do the things that kids are supposed to do.
Sam’s Day was started in 2005 by friends of Sam Killian. Since 2005, Sam’s Day has raised over $534,000, all of which has gone directly to funding a cure for Duchenne. With your support, we are having an impact on this disease, and how it affects the 150,000 boys around the world with Duchenne MD.
Please visit our fundraising page: http://ParentProjectMD.org/Sam2011Donate
To join the fight against Duchenne Muscular Dystrophy, start your own fundraising page for Sam’s Day!
