Here’s the expanded video interview about Sam and Duchenne:
To see the other video from this event, check out http://www.samsdaytexas.org/2011/08/14/interview-with-sam-killian-at-mda-annual-summer-camp-on-channel-11-and-21/
Sam’s Day at NorthPark - Fighting For Kids With Muscular Dystrophy
Here’s the expanded video interview about Sam and Duchenne:
To see the other video from this event, check out http://www.samsdaytexas.org/2011/08/14/interview-with-sam-killian-at-mda-annual-summer-camp-on-channel-11-and-21/
On October 29th sometime between 9 am and 10 am, Sam and John Killian are scheduled to be on the Good Morning Texas show on WFAA (Channel 8). Keep an eye out for them either on TV or they might even post the segment on their website at http://www.wfaa.com/good-morning-texas after the show.
Update: Below is the video segment that John and Sam did this morning. You can also see it at http://www.wfaa.com/good-morning-texas/Celebrate-Sams-Day-106301933.html
After 5 Years at White Rock Lake, Local Outreach Effort and Fundraiser Moves to a Larger Stage
Dallas, TX – October 4, 2010 – John Killian, Chairman of Parent Project Muscular Dystrophy (PPMD), the largest non-profit organization in the United States focused on finding a cure for Duchenne muscular dystrophy (Duchenne), and his wife Stefanie Killian, announced today that the 6th Annual Sam’s Day will take place on October 30, 2010 from 11am to 5pm at NorthPark Center in Dallas. Sam’s Day is named for the Killian’s son Sam (8 years old), the youngest of four children, who was diagnosed with Duchenne muscular dystrophy in early 2005. Sam’s Day was started in October of the same year by the Killian’s financial advisor and close personal friend, Chris Messick, CFP of Northwestern Mutual.
In its first five years, Sam’s Day was held at White Rock Lake in Dallas, but the event organizers were looking for a new venue this year to increase the event’s exposure, and found a willing partner in NorthPark Center. According to NorthPark’s Coordinator of Special Events, Lona Crabb, “We are excited about the opportunity to help grow Sam’s Day – we think it is a great opportunity to host a fun-filled, family focused event and it fits well with our goal of supporting our local community.”
Sam’s Day has become an annual destination for Dallas residents. It is a free, family-friendly event with bounce houses, obstacle course, clowns, face painters, magicians, and lots of other kid-friendly entertainment including performances by David Chicken and the Spooky Strings Marionette Show. The event will also feature a silent auction that will include items such as a seven day stay in a 3,000+ sq ft condo in Puerto Vallarta along with other travel packages, sports tickets, and sports memorabilia. This year’s event will have a Halloween theme.
Sam’s Day founder Chris Messick, who received a Northwestern Mutual Foundation community service award last year for his work on Sam’s Day which included a donation of $10,000 to the charity, is especially excited about this sixth anniversary year, and the move to NorthPark Center. “We really didn’t know what to expect the first year we held Sam’s Day. And now, here we are, five years later with an event that we are proud to say has increased awareness about Duchenne in the Dallas area and raised over $500,000 for research to help the thousands of amazing kids like Sam who are fighting this terrible disease. Our move to NorthPark Center will help make Sam’s Day 2010 our biggest event ever. ”
The Killians, while happy that people attend Sam’s Day to have fun as a family, emphasize the underlying message of the day. John says, “Fun games and great entertainment are all part of what have made Sam’s Day a success over the last five years. But what really excites us, are the conversations it sparks in the families that attend. Sam’s Day gives parents an opportunity to talk to their own children about what it means to face adversity in life, and to talk about accepting people with different physical and mental abilities. Sam is especially excited about the move to NorthPark Center – he thinks it will be the best Sam’s Day ever!”
Sam’s mom, Stefanie, adds, “There are so many distractions in today’s world making it tougher and tougher for families to connect with each other while having fun doing it. We wanted to create an experience that our family would enjoy going to and then hopefully, other families would want to come as well. CenterPark at NorthPark Center will be a beautiful new venue for us to welcome all of the families.”
Sponsors of Sam’s Day include Holliday Fenoglio Fowler, L.P., ING, NorthPark Center,Vinson and Elkins, Northwestern Mutual, Asset Intertech Inc, Wischmeyer Benefit Partners, Pricewaterhouse Coopers, Chicago Title, CB Richard Ellis, and Fire Safety First.
For more information on Sam’s Day, please visit www.SamsDayTexas.org.
About Duchenne Muscular Dystrophy
Duchenne, the most common form of childhood muscular dystrophy, is a progressive and fatal muscle disorder affecting boys and young men that causes the loss of muscle function, wheelchair dependency and a decline in respiratory and cardiac function. It occurs in 1 in 3,500 births making it the most common fatal genetic disorder diagnosed in childhood.
About PPMD
Parent Project Muscular Dystrophy (PPMD) is a national not-for-profit organization founded in 1994 by parents of children with Duchenne and Becker muscular dystrophy. The organization’s mission is to improve the treatment, quality of life and long-term outlook for all individuals affected by Duchenne muscular dystrophy through research, advocacy, education and compassion. PPMD is headquartered in Middletown, Ohio with offices in Fort Lee, New Jersey. For more information, visit www.parentprojectmd.org.
Check out the video invitation to Sam’s Day 2010 – Halloween at NorthPark. Come join us on Saturday, October 30th from 11 am to 5 pm.
Duchenne Muscular Dystrophy (DMD) is the most common lethal genetic disorder diagnosed during childhood. It is a progressive muscle disorder that causes loss of muscle function and independence. TO THIS DAY…there is NO CURE.
Because the Duchenne Muscular Dystrophy gene is found on the “X” chromosome, the disorder manifests primarily in boys. It knows no boundaries. It affects all races and all cultures.
DMD affects approximately 1 in 3,500 boys and each year, around 20,000 children worldwide are born with DMD.
Although many cases are genetically inherited, approximately 35% of all DMD cases are the result of a new random spontaneous genetic mutation that can occur during any pregnancy regardless of family history.
In 1986, the gene that causes Duchenne Muscular Dystrophy was successfully identified and isolated by medical researchers.
For more information, check out PPMD’s pages about Duchenne including:
Sam’s Family Fun Day is an opportunity to help raise funds to benefit the research programs of Parent Project Muscular Dystrophy and to help kids of all ages learn about muscular dystrophy and living with disabilities. Our goal is to help give kids with Duchenne muscular dystrophy a chance to do the things that kids are supposed to do.
Sam’s Day was started in 2005 by friends of Sam Killian. Sam is a 7 year old boy from Rockwall, TX that was diagnosed with Duchenne Muscular Dystrophy in 2005. Since 2005, Sam’s Day has raised over $250,000, all of which has gone directly to funding a cure for Duchenne. With your support, we are having an impact on this disease, and how it affects the 150,000 boys around the world with Duchenne MD.
Please visit our fundraising page: www.ParentProjectMD.org/Sam5
When: Saturday, October 24, 2009 10:00am til 2:00pm
Where: Flagpole Hill at White Rock Lake (Map) – Google Map
Activities: Bounce house, Rock Climbing Wall, Obstacle Course, Fast Pitch, Slide, Games2U Gaming Truck, Hamster Ball, Lazer Tag, Face painters, Magicians, Stilt Walkers, Train Rides, and a NASCAR legends racer
Sam’s Day entertainment provided by Games 2U!
Food: Chic-fil-a, hamburgers, hot dogs, and ALL the fixins, shaved ice and cotton candy.
Sam’s Day is Open to the Public!

Click HERE to start your own fundraising page for Sam’s Day!
Unable to attend the event but still want to help?


On September 26, 2009, Parent Project Muscular Dystrophy (PPMD) and the American Football Coaches Association (AFCA) will once again join forces for Coach to Cure MD, a one-day, nationwide event designed to raise awareness about Duchenne muscular dystrophy. Click here to learn more about Coach to Cure MD.
Tim Rose Golf Tournament Raises $10,000 for Sam’s Day. [Read more...]

Sam's Story: To his friends, Sam Killian is a fun-loving and outgoing little guy. He never met a stranger and will talk to you until your head spins. He loves to run and play - trying to keep up with his older brothers and sister, just like any nine year old. Most people would never … [Read More...]
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